A volunteer-based, charitable organization that works to find treatments, causes and a cure for Barth syndrome (BTHS).

On-going programs include: 
 
Science and Research

• participation in helping to fund approved Barth syndrome specific research in Canada and worldwide 

Health Counselling

• providing affected individuals and their families with information and emotional support to improve quality of life, advance treatments, and find a cure for Barth syndrome 

Health Information Activities

• awareness program for the medical community and the general public providing information about Barth syndrome, diagnostic alternatives, and treatments to help patients get care unique to Barth syndrome

Contact for information

No application required