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Neurofibromatosis Ontario

Contact Information
Toll Free Phone 1-866-843-6376
Social Media Facebook Facebook:
Twitter Twitter:
Primary Contact Sue Corson, President, Medical Liaison; Email:
Agency Information
Description (Agency) Provincial Neurofibromatosis Society
Legal Status (50) Non Profit
Established 1985
Primary Executive Sue Corson, President; Email:
Funding Fundraising ; Donations - Charitable Registration Number: 119053775 RR0001
Elections Once every two years
Description and Service Details
Description (Service) Volunteer driven health organization offering support to people living with neurofibromatosis and their families * research support * information provision * development of local support groups * awareness events * advocacy * medical liaison * family camp
Hours Telephone calls Mon-Fri 9 am-6 pm
Meetings Annual Conference in the Greater Toronto area * conferences are usually in the spring and include medical guest speakers and time to network with others with neurofibromatosis (NF)
Areas Served Ontario
Eligibility No restrictions
Application Call or email for an application
Languages English
Fees Membership - $10 per year * not mandatory for events (2019) ; None - for information by phone or email ; Method(s) of Payment Accepted - Cheque, Visa, Paypal, EMT
Site Information
Located In Community London
Address & Map
Unit 30
1814 Shore Rd
London, ON N6K 0C6
View Google Map
Intersection Oxford St W and Kains Rd
Mailing Address PO Box 91119 
Bayview Village 
Willowdale, ON M2K 2Y6
Physical Access Not Applicable
Categories and Classification
HCSD Main Heading Child / Family Services ; Disabilities
HCSD Sub Heading Camps ; Disability Associations
Service Categories Health Related Advocacy Groups ~ Neurofibromatosis ; Subject Specific Public Awareness/Education ~ Neurofibromatosis ; Therapeutic Camps ~ Neurofibromatosis ; Voluntary Health Organizations

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