EDS Foundation

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Record #: MHH0510

Last Full Update: 15 Jul 2024

Contact Information

Toll Free Phone	1-833-452-3371 (1-833-ILC-EDS1)
Fax	1-888-327-7853
E-Mail	contactus@ILCEDSCanada.org
Website	www.theilcfoundation.org/
Social Media	Facebook, LinkedIn, Twitter, YouTube
Primary Contact	Hannah Raposo, Communications Coordinator; Email: media@ILCEDSCanada.org

Agency Information

Legal Status	(50) Non Profit
Established	2010
Primary Executive	Sandy Smeenk, Director; Email: S.Smeenk@ILCEDSCanada.org
Alternate Executive	Jacqui Raposo, Executive Director; Email: J.Raposo@ILCEDSCanada.org
Funding	Donations * Membership

Description and Service Details

Description (Service)	Registered charitable foundation providing support to children and families with chronic pain Services include: virtual support groups wellness support sessions for those with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HDS), and its related conditions including chronic pain or other Heritable Connective Tissue Disorders pain and educational resources crisis lines and mental health resources agency cannot provide medical or pharmaceutical advice and does not endorse any one method of treatment for people suffering from chronic pain academic and research partnerships
Hours	Mon-Fri 9am-5pm
Dates	Peer events are held monthly at various locations * call or visit the website to learn about and participate in upcoming events
Meetings	Support sessions are about one-hour long * advanced registration is required * 18 participants per week are the maximum * Zoom link will be sent to members one week before each session * support groups do not replace professional care
Areas Served	Halton Region ; Peel Region
Eligibility	No restrictions
Application	Call, email or visit the website for more information
Languages	English
Fees	None

Site Information

Site Location	Oakville (Queen Elizabeth)
Located In Community	Oakville
Address & Map	700 Third Line, Suite 136 Oakville, ON L6L 4B1 View Google Map
Intersection	Third Line and Wyecroft Rd
Physical Access	Partially Accessible

Categories and Classification

HCSD Main Heading	Disabilities
HCSD Sub Heading	Disability Associations
Service Categories	Disease/Disability Information ~ Collagen Disease ; Disease/Disability Information ~ Ehlers-Danlos Syndrome ; Disease/Disability Information ~ Pain ; Pain Management ; Peer to Peer Networking ~ Collagen Disease ; Peer to Peer Networking ~ Ehlers-Danlos Syndrome ; Peer to Peer Networking ~ Pain ; Voluntary Health Organizations ~ Ehlers-Danlos Syndrome

Copyright

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